What NOT to say/do to Grieving Parents and What can help

So maybe you're here as a grieving mother, father, grandparent etc. Or maybe you're here because you're a friend who doesn't know how to go about talking to a friend who's suffered infant loss. More times than not, people want to be helpful and say things they think will help you. 9 times out of… Continue reading What NOT to say/do to Grieving Parents and What can help

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Our Emma Bear

So I know most have heard of Molly Bears, the weighted teddy bears, and those are great. The only downside is cost and wait time to receive it (6+ months if you don't get a special pass and you have to register at a certain time of the month to be put on a wait… Continue reading Our Emma Bear

What is PSS AMC? ****TW Pictures of Emma****

Emma's ultimate diagnosis after autopsy and more testing was Pena Shokeir Syndrome Arthrogryposis Multiplex Congenita. Let's break the two of those down a little more. Quite a mouthful eh??Arthrogryposis Multiplex Congenita or AMC is a disease of newborns resulting in decreased flexibility of the joints. Symptoms differ drastically from person to person, including stiff joints… Continue reading What is PSS AMC? ****TW Pictures of Emma****